The impact of fibromyalgia on society
DOI:
https://doi.org/10.56294/cid202375Keywords:
Fibromyalgia, Family Satisfaction, Social Support, Work ConditionAbstract
Fibromyalgia is a disease characterized by intense generalized chronic musculoskeletal pain. Its etiology is not known and there is no curative treatment but only symptomatic and focused on pain management. The lack of empathy on the part of family, work, friends, and health professionals increases the psychosocial discomfort. Educating the population and health professionals on the behavior of the disease could be an opportunity to improve social ties, including friendships, family, health, and work. The development of the community approach in the study of fibromyalgia is of significant importance in the understanding and management of this complex chronic disease. Fibromyalgia not only affects the individual sufferer, but also has a profound impact on their social and family environment. By adopting a community approach, it is recognized that community support and understanding is crucial to improving the quality of life for those living with fibromyalgia. This approach involves building support networks and promoting public awareness of fibromyalgia, which in turn reduces the stigma associated with the disease. In addition, the development of community education programs and support groups can help empower people with fibromyalgia to better manage their symptoms and find effective coping strategies
References
1. Bhargava J, Hurley JA. Fibromyalgia. StatPearls, Treasure Island (FL): StatPearls Publishing; 2023.
2. Grande Gascón ML, Calero García MJ, Ortega Martínez R. Impacto social y familiar de la fibromialgia. Seminario médico 2021;63:13-27.
3. Montoya Navarro A, Sánchez Salazar CA, Krikorian A, Campuzano Cortina C, López Marín M. Sufrimiento en pacientes con fibromialgia y su relación con el impacto en la calidad de vida, la soledad, el estado emocional y el estrés vital. Revista Colombiana de Reumatología 2023. https://doi.org/10.1016/j.rcreu.2023.03.003.
4. Aucatoma DVR, Gamboa MSR. Uso de terapia alternativa y complementaria para aliviar el dolor en adultos y adultos mayores. Salud, Ciencia y Tecnología 2022;2:76-76. https://doi.org/10.56294/saludcyt202276.
5. Cuetos Pérez JM, Vázquez IA. Relación del apoyo social y familiar con la aceptación del dolor en pacientes con fibromialgia. International Journal of Psychology & Psychological Therapy 2018;18:151-61.
6. Siracusa R, Paola RD, Cuzzocrea S, Impellizzeri D. Fibromyalgia: Pathogenesis, Mechanisms, Diagnosis and Treatment Options Update. International Journal of Molecular Sciences 2021;22:3891. https://doi.org/10.3390/ijms22083891.
7. Roth Damas P, Portillo Santamaría M, Folch Marín B, Palop Larrea V. Fibromialgia y empatía: un camino hacia el bienestar. Aten Primaria 2018;50:69-70. https://doi.org/10.1016/j.aprim.2017.03.016.
8. Pujal I-Llombart M, Mora Malo E, Schöngut Grollmus N. Fibromialgia, desigualdad social y género. Estudio cualitativo sobre transformación del malestar corporal en malestar psicosocial. Duazary 2017.
9. Marrero-Centeno J, Moreno Velazquez I, Sánchez-Cardona I. Fibromialgia en el Trabajo: explorando su impacto en el desempeño laboral. Revista Interamericana de Psicología Ocupacional 2017;36. https://doi.org/10.21772/ripo.v36n1a01.
10. Mohabbat AB, Wight EC, Mohabbat NML, Nanda S, Ferguson JA, Philpot L, et al. The correlation between occupation type and fibromyalgia severity. Occup Med (Lond) 2023;73:257-62. https://doi.org/10.1093/occmed/kqad063.
11. Ascanio VT, Ron M, Hernández-Runque E, Sánchez-Tovar L, Hernández J, Jiménez M. Trabajadores con discapacidad y significación del proceso Salud-Trabajo. Visibilizando claves para la prevención. Salud, Ciencia y Tecnología 2022;2:224-224. https://doi.org/10.56294/saludcyt2022224.
12. Nevárez KN. Work Condition and Severity of Fibromyalgia / Condición Laboral y Severidad de la Fibromialgia. Red de Investigación en Salud en el Trabajo 2020;3:23-23.
13. Bair MJ, Krebs EE. Fibromyalgia. Ann Intern Med 2020;172:ITC33-48. https://doi.org/10.7326/AITC202003030.
14. Muñoa-Capron-Manieux M, Gandarias-Olaran L. Fibromialgia: adversidad desde el sistema sanitario. Aten Primaria 2022;54. https://doi.org/10.1016/j.aprim.2021.102273.
15. Sarzi-Puttini P, Giorgi V, Marotto D, Atzeni F. Fibromyalgia: an update on clinical characteristics, aetiopathogenesis and treatment. Nat Rev Rheumatol 2020;16:645-60. https://doi.org/10.1038/s41584-020-00506-w.
16. Ante JAC, Vacacela BPD. Cuidados paliativos y muerte de pacientes hospitalizados. Un aporte desde la perspectiva de Enfermería. Salud, Ciencia y Tecnología 2023;3:381-381. https://doi.org/10.56294/saludcyt2023381.
17. Heggen KM, Berg H. Epistemic injustice in the age of evidence-based practice: The case of fibromyalgia. Humanit Soc Sci Commun 2021;8:1-6. https://doi.org/10.1057/s41599-021-00918-3.
18. Yaghmaian R, Miller Smedema S. A feminist, biopsychosocial subjective well-being framework for women with fibromyalgia. Rehabilitation Psychology 2019;64:154-66. https://doi.org/10.1037/rep0000226.
19. Ghavidel-Parsa B, Bidari A, Tohidi S, Shenavar I, Kazemnezhad Leyli E, Hosseini K, et al. Implication of invalidation concept in fibromyalgia diagnosis. Clin Rheumatol 2021;40:2369-76. https://doi.org/10.1007/s10067-020-05515-4.
20. TEMELOĞLU ŞEN E, HOCAOĞLU A, SERTEL BERK Ö. Group Psychotherapy With Fibromyalgia Patients: A Systematic Review. Arch Rheumatol 2019;34:476-91. https://doi.org/10.5606/ArchRheumatol.2019.6801
Published
Issue
Section
License
Copyright (c) 2023 Camilo Silva-Sánchez (Author)
This work is licensed under a Creative Commons Attribution 4.0 International License.
The article is distributed under the Creative Commons Attribution 4.0 License. Unless otherwise stated, associated published material is distributed under the same licence.
